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Anxiety-related muscle twitches. Does anyone get them?
#11
(01-13-2018, 02:22 AM)maldita Wrote: Rafterman, my fasciculations are definitely different and more of an annoyance unless my pain is really bad. It is a difficult situation to be in. My dad-in-law had ALS and I took care of him so I can understand the difficulty. More hugs from me.

Thanks again, Maldita. your father-in-law was really blessed to have someone like you to care for him. People usually run for the hills when they hear that someone has this disease. Even the strongest people can't handle it. It is hard enough to be a caregiver to anyone who has any major disease, but caring for an ALS patient brings special challenges. You must be a very strong woman, emotionally speaking, and quite selfless. Its hard enough for a wife to care for her husband, but a woman caring for an in-law in that situation is extraordinary. God bless you.   RM
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#12
Hey Rafterman,
Shoot I am sorry to hear your wife is struggling with both anxiety and annoying twitches. I know t is possible for twitches to be caused by anxiety so hopefully knowing that eases her worries. Has she possibly looked into something like gabapentin?  That can be used to help calm the nerves. Also, maybe look into some type of muscle relaxant to help like baclofen?  And definitely treating the anxiety isn’t importantly since that’s the underlying factor. Does she’s use anything to treat that?  Benzos of course are a go to in treating anxiety but if she wanted to look into something else or if benzodiazepines haven’t helped her, buspirone could work (also taking it everyday could help avoid anxiety rather than treating it as it happens). And as weird as this sounds, my psychiatrist prescribed me to take vyvanse each morning and it works wonders for me Smile


I hope she finds some relief!  Happy weekend!
(Oh and of course try some meditation, yoga, or perhaps a massage to relief some anxiety and stress Wink
"You don’t have to see the whole staircase, just take the first step.” - Dr. MLK Jr.
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#13
(01-19-2018, 11:28 PM)maeve Wrote: Hey Rafterman,
Shoot I am sorry to hear your wife is struggling with both anxiety and annoying twitches. I know t is possible for twitches to be caused by anxiety so hopefully knowing that eases her worries. Has she possibly looked into something like gabapentin?  That can be used to help calm the nerves. Also, maybe look into some type of muscle relaxant to help like baclofen?  And definitely treating the anxiety isn’t importantly since that’s the underlying factor. Does she’s use anything to treat that?  Benzos of course are a go to in treating anxiety but if she wanted to look into something else or if benzodiazepines haven’t helped her, buspirone could work (also taking it everyday could help avoid anxiety rather than treating it as it happens). And as weird as this sounds, my psychiatrist prescribed me to take vyvanse each morning and it works wonders for me Smile


I hope she finds some relief!  Happy weekend!
(Oh and of course try some meditation, yoga, or perhaps a massage to relief some anxiety and stress Wink
Howdy, Maeve,  and thank you very much! I appreciate all of your suggestions. It is obvious that you put a lot of thought into it and you are right on target. You named several things that the doctor recommended for her. She has tried Gabapentin and also Baclofen. The Gabapentin seemed to help right off the bat and then petered out. She said that it also made her feel a little creepy. The Baclofen also seemed to help for a while and then, likewise, petered out. I totally agree that underlying anxiety is crucial to address in these situations. She is on a decent daily dose of benzo's as it is. I told her to talk to her psych about temporarily upping the dose as a test. Or maybe switching out one benzo for another. The thing is that she has learned to live with the actual twitches, but her mind won't let her stop worrying that she may have motor-neuron disease. The good thing is that a lot of time is going by. People with MND would have probably advanced to the next stage by now. She is still fine, minus the twitching. I doubt that she will ever get rid of them, but if another year or so would go by, I think her mind would be eased and that she would realize that she doesn't have MND. Thank you again for your help and concern. We really appreciate it.    RM
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#14
I just had a sleep study and the twitching is normal when going into sleep to some degree, Also noted increase when I do not take benzos,everyone gets those to some degree,I would not worry at all unless there are other symptoms or the twitching gets very serious,myne seems to occur in phases may be magnesium etc..I'll get them for a week or a few days,really just a bit annoying and hoping people don't notice.The likelihood is so remote 7t sometimes I over think stuff too..
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#15
(01-20-2018, 08:57 AM)Justice1 Wrote: I just had a sleep study and the twitching is normal when going into sleep to some degree, Also noted increase when I do not take benzos,everyone gets those to some degree,I would not worry at all unless there are other symptoms or the twitching gets very serious,myne seems to occur in phases may be magnesium etc..I'll get them for a week or a few days,really just a bit annoying and hoping people don't notice.The likelihood is so remote  7t sometimes I over think stuff too..

Howdy Justice,
Do you get them in both your upper and lower body? My wife was okay when she had them in just her calves because they are so common there. She began worrying more when the started appearing everywhere. I thought that maybe she was having a psychosomatic reaction to the fact that my MND started with fasciculation's. That would freak out anyone. I just wish that they could give her a diagnosis that rules that out. It takes so long for any kind of diagnosis of things of that nature. Anyhow, thank you!   RM
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#16
Your so right about it taking so very long..I find care is so fragmented.I have the twitches to various body parts,upper and lower,trunk and extremeties,and it's not anything bad so far..I think underlying cause can be so broad,,like electrolyte imbalance,hormones,some illnesses of course,and can just be normal.The odds are that its just normal body stuff but since she is so worried has she had any tests done to see what underlying thing it maybee.Ive found my diagnosis,and it sucks,,it's a systemic vein failure,,and also narcolepsy,,I'm a bit shocked and processing it all..preceded by 5 yrs of hypertension,I've had a gazillion tests and nothing is happening that could be causing unusual twitches..
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#17
(01-21-2018, 11:36 AM)Justice1 Wrote: Your so right about it taking so very long..I find care is so fragmented.I have the twitches to various body parts,upper and lower,trunk and extremeties,and it's not anything  bad so far..I think underlying cause can be so broad,,like electrolyte imbalance,hormones,some illnesses of course,and can just be normal.The odds are that its just normal body stuff but since she is so worried has she had any tests done to see what underlying thing it maybee.Ive found my diagnosis,and it sucks,,it's a systemic vein failure,,and also narcolepsy,,I'm a bit shocked and processing it all..preceded by 5 yrs of hypertension,I've had a gazillion tests and nothing is happening that could be causing unusual twitches..

Wow, I hadn't realized that you had been through all that, but I fully relate. Took me 2 years to get my MND dx and about every test under the sun. Mine was so blatantly MND, but docs hate to have to break that news to anyone. My doctor himself told me that doctors feel that way. Like you said, there are so many underlying issues that can cause similar symptoms. I once saw a list online that had over 200 causes of benign fasciculation's. The thing is that when you add is atrophy of the muscles, progressive weakness, etc, it narrows things down to the point that you know you are in trouble. BTW, my wife doesn't have any of those things, so will keep on praying for the best. She does have a positive EMG and some denervation, but they are writing that off to other factors. She continues to go for one test after another. Interesting that you should mention narcolepsy. I have had that since childhood and they seem to just be making the connection between people with that and other disorders. In fact, there is a study online that says that 80% of those suffering from narcolepsy with eventually develop a neuromuscular disorder (not necessarily a deadly one, though). Has to do with displaced proteins in the brain that are causing the narcolepsy. So, what are they going to do for your systemic vein failure, if I may ask? Is it treatable? Doesn't it suck to chase down a dx and then find out that it is not a good one? Please let me know how you are doing and how they are treating you.  Thanks, RM
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#18
Yes, I get these constantly. Another name aside from fasciculations is myoclonic twitches. Myoclonus is called positive or negative, positive being the twitches, and negative look like you took way too much muscle relaxants.

Also if you're contracting your eye (closing it) that can be called blepharospasm. I know for me it's more of a flutter.

They can be strongly exacerbated by use/abuse of anti-anxiety medication!! Just a heads up. I myself have experienced this upon discontinuation of medication. However by that same token, they may be temporarily more severe during a period of discontinuation of a drug therapy. In many cases they'll get less severe. For me they have in this situation, although they did still persist to a lesser degree.

thegreaseman: that last bit is called a tremor. I already have essential tremor (genetic, benign shaking- in my hands) but the anxiety makes it sooo much worse. If you have that and it causes trouble for you (people remarking on it mostly) you should ask to be prescribed a beta blocker. It helps with that and it sorta helps with anxiety too.

and actually I have experienced shaking in my head when I had tremor + anxiety real bad. so that may be similar to what you're saying
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#19
I get really bad eye twitches when I'm very tired or stressed out. it's usually just in one eye and not both. still freaks me out though.
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#20
(01-31-2018, 08:36 PM)thegreaseman Wrote: Hello Rafterman,
Yes, I do experience startling, RAPID (sometimes painful) muscle twitches related to anxiety. Worst part about it is that it hits me in the chest and upper back, so I start panicking about heart problems. Been to a doctor, been to a psych ward. EKGS, blood pressure, many tests and no problems found. I have also experienced an odd feeling like my head jerks foreward with no warning, sometimes happens during a panic attack... Anxiety is a ruthless beast. I also sometimes shake violently but this isn't really a muscle twitch.

So sorry to hear about this, G-man. I can totally relate. I know many who have nearly your exact symptom profile. As you say, anxiety is a ruthless beast. No truer words were ever written. The post below by Nincompoop has great information. I can tell you that it is all correct because I got my education on these matters while spending 2 years getting my ALS dx. Believe me, a person will research like they never have before when they think that they have that. The good news is that no one who has responded to this thread fits the profile for that disease. I am so happy about that. Also, to Nincompoop's observation that anxiety meds themselves can cause fasiculation's...oh so true. I have thread on that. Coming off, going on, or even habituating to anxiety meds, and some AD's, can cause everything from brain zaps to muscle twitches. Thanks to everyone who has posted to this thread. I actually almost didn't start it because I thought that nobody would respond.  RM
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