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Paxil Nightmare, anyone else?
(12-07-2017, 01:24 PM)Mikka Wrote:
(12-07-2017, 05:21 AM)Rafterman Wrote: Hey there, my friends FF and Mikka!

Mikka, I am so sorry to hear about the friend that you knew who had tried ECT and everything else and ended up taking his life. I can surely see why that greatly affected you. Not only the associated grief that comes from having to go through like that, but also because of the doubts that it must have planted in your mind. One of the things that keeps people from becoming depressed is the assurance that if they did, there would always be something out there to pull them back out of it. And that IS the case for close to 90% of the people who do become depressed. Once you lose that feeling of assurance, it is easy to start feeling that the next person who ends up like that will be themselves (or a loved one). Those thoughts may not even be recognized at a conscious level, but they can drag a person down. Combined with the grief caused by the loss of that person's friend, it easy to see why it would be normal to become depressed. Death, particularly a tragic one, is very difficult for the human mind to reconcile. The best that many can do is compartmentalize it. Grieve it correctly, then attempt to live with it. It can drive a person deeper into depression if they try to totally eliminate it from their thoughts because that creates an impasse in the mind. It's asking the mind to do something that is impossible. I am not saying that any of this applies to you because I don't know if it does. I don't know enough about the grieving process that you employed after this event and I don't know enough about you, in general. I am just hoping that you aren't feeling less hopeful about your sister's situation because of what happened with your friend. It would be absolutely normal if you did feel that way, but I would advise to focus on the positive's (like the high percentage of people who can be helped out of depression, the high percentage who respond to ECT, the high percentage that are responding to alternative TRAM, opioid's etc, and the promising new technologies that offer the most hope yet). One of the things is gene testing, that FF brought up. I address that below. Please read on because I come back to your sister's situation in the end.

Hey FF! Thanks for bringing up gene testing. It's relatively new, but full of promise. They swab your cheek and that gives them a sample of your DNA, which they then mix with different AD/ATD's and then observe how the meds metabolize. It can also be done with PK meds for people who suffer with pain. The old way to find the right med for a patient was a long PET session with IV introduction of different medications. This new way is exciting because it relies on DNA and is also so easy to participate in. When I had MDD, it was torture to accomplish the simplest thing. A trip for a PET scan would have been like climbing Mt Everest. GeneSight is the largest company of the few that are springing up. Insurance companies are beginning to cover gene testing. Medicare and Medicaid both cover it, 100%. Other insurance companies usually require a co-pay. GeneSight claims that the cost is usually a couple of hundred dollars. The fact that Medicare and Medicaid cover it is a very good sign. In my experience, they usually only cover tried and true procedures, not snake oil. It also bodes well for the future coverage by private insurance companies. 

Mikka, I know that you sister doesn't have insurance, but do you think she would qualify for Medicaid or any local benefit's? I know that Medicaid is technically insurance, but you know what I mean. In our state, hospitals and doctors group together under something called "AccessHealth" and offer free care (specialist's. labs, imaging, everything) for absolutely free. And you don't have to be indigent to join. I wonder if they may have such a thing where you live. Of course, if a person has none of these, they could still be treated at the ER for depression/anxiety if it's approached in the correct manner. I would say that about a quarter of our local population use the ER in this way, for all types of maladies. There are other ways too, but I can't discuss them on the boards. I know that you can't PM yet. I would like to give you my email address, but not sure if I am allowed to do that. I know that you can see everyone's email address when you reach 50, but the rules are pretty detailed. Hey FF, is it okay to put my email addy in a post? Please let me know.

Okay, will check back in tomorrow to see either of you have responded. Goodnight for now.  RM

GOOD morning Rafterman!

You  are a very informative and a kind person. Thank you so much for trying to help me and my
sisters situation... You have wonderful insight, as well. I can't tell you how much I appreciate that!

My sister, I'm not sure about the Medicaid situation for her. I'll have to ask if she is covered
in that regard.  And the DNA testing for AD sounds amazing!!
That could really change the way we are treated and hopefully get some real relief
if we have the correct medication....
I'll have to do some research on that. Love it.

Have a wonderful day... or night, depending where you're at  Blush
Thanks for all your kind comments, Mikka!  Yes, please ask your sister about her Medicaid situation. I would love to see her hooked up with some benefit's that would allow her to pursue any type of treatment that she desires, without all the hassle. I know some of the in's and out's of getting people health benefit's because I counseled in a major urban city and many were in need of those. There are a lot of option's and some aren't advertised all that well.  Have a good night!  RM
I had a horrible experience with Paxil. I had tried other daily medications, but I never felt any different when taking them. Then one day the doctor wants to try Paxil, so I gave it a chance. After a couple weeks, I was sitting in my truck at nights, just crying my eyes out and wanting to die. I finally realized it was the Paxil, and I tapered myself off of the Paxil. Worst experience with an everyday med ever!
Hi Freedom !

I'm the same with that... Paxil made me weep contantly ! My husband takes
it daily and he's totally fine.  It's scary how people can have verrrry different
effects from it. And dangerous, too. 
Mikka~ Smile
(12-15-2017, 03:33 PM)Mikka Wrote: Hi Freedom !

I'm the same with that... Paxil made me weep contantly ! My husband takes
it daily and he's totally fine.  It's scary how people can have verrrry different
effects from it. And dangerous, too. 
Mikka~ Smile


You're exactly right. It's very scary how these daily medications effect some people. Some people they work for and do exactly what they are supposed to do for the person. Zoloft works for my Mother, but it just makes me feel nauseous. I'm sorry to hear that you went through the things that I did on Paxil. It was hell! I'm happy to hear it works for your husband! That's great he found something that works. It's very hard sometimes, but I wish you both the very best!  Big Grin

Has anyone tried Stablon or Tianeptine? It's an atypical anti-depressant that works both on depression and anxiety and doesn't have many side effects. I've never tried it but they say it works for "motivation enhancement, anxiety suppression, cognitive euphoria, focus enhancement, rejuvenation, and cognitive fatigue". I'm usually not very big on these types of things but I've come across it often and it always peaks my interest.
(01-07-2018, 02:31 AM)coffeedude22 Wrote: Has anyone tried Stablon or Tianeptine?  It's an atypical anti-depressant that works both on depression and anxiety and doesn't have many side effects.  I've never tried it but they say it works for "motivation enhancement, anxiety suppression, cognitive euphoria, focus enhancement, rejuvenation, and cognitive fatigue".  I'm usually not very big on these types of things but I've come across it often and it always peaks my interest.

It is one of the only AD's that I have ever tried. I was misdiagnosed with Parkinson's in 2016. Turns out that I had MND instead, which makes Parkinson's seem like a trip to Disney, but that's another story. They put me on Tianeptine. That was supposed to increase norepinephrine levels, thus increasing dopamine levels. It made me dizzy and a little extra anxious for a week or so, then kicked in nicely. Kind of felt like TRAM. I know this med is a u-opioid-receptor agonist, so no secret why it would give the feel of TRAM. They say that it has less cardiovascular side effects that something like an SNRI. Pretty well reviewed. I came off because they were no longer treating Parkinson's and I wasn't depressed at the time, but I have always thought about returning to it if the need arises. Not much literature as to possible withdrawal problems, but I kind of think there may be some (probably insignificant) ones after long term use. So glad that you brought it up, dude.
I could not agree more, Rafterman. I have been taking ADs since early 30s. I am happy they are available, and they have helped me tremendously, after a bit of trial and error. Like you mention, I cycle about 2 years and switch to another, usually going back to the previous one. Recently, my doc switched me to a new AD, that I am too lazy to look up the name of, but it did absolutely nothing. I was very depressed, unnecessarily I might add. When I went back, she tells me, "Oh, that stuff hasn't worked for anyone so far." What??? So, some rep gave you samples and you're handing them out like candy, but if I mentioned a benzo to her, she looks at me like I have 14 heads. So, I need her meds, which I generally remind her which work and which do not and supplement to help me get by.

Sorry, don't mean to be a Debbie (or Donald) Downer after my last post, but imho Paxil sucks. I'm glad it works for your hubby, Mikka!! idk if I'd relayed this screed to the group already. If so, please pretend I'm old aunt who repeats herself and simply nod or ignore.

My daughter was about 16 when I took her to a neurologist. She had severe anxiety. Needless to say, I filled out a ton of paperwork, and we met with the neuro PA, not whom we were scheduled to meet with. Having my daughter follow her finger and do obligatory internist stuff, she talked with us for less than 5 minutes. Then prescribed Paxil for my teen daughter. This was when the studies were coming out fast and furious about the side effects of Paxil (increased depressive thoughts, suicidal thoughts,), especially for teens. Med community opinion was keep kids off Paxil. Needless to say I did not fill the prescription and sent doc about 20 articles on Paxil asking shouldn't she have known this?? I refused to pay. I called the office several times and they never answered. My daughter takes clon sometimes now.

Sorry I can't be more helpful with Paxil's effects in adults. Just wanted to relay my personal experience with it. Thanks!
Hi Friend, Great call on not filling script for teen daughter, as it was Big Pharma pushing the stuff at the time, a side effect was decreased anxiety the Psych Doc told me as I mentioned earlier in this thread. Scripting a med for the possibility of a side effect is ridiculous!!!! She came around after I quit a month later as it was really messing me up. She was sorry and gave me Clon as well and things have been much better since. I guess now they can swab your cheek and find an AD that is more compatible with the patient. How is your daughter doing on Clon taken only as needed? Best Wishes-FF
Hey FF, I was gonna answer yesterday, but didn't know if I'd gone over my lot or what. I'm glad, I think it was Rafterman, who mentioned about the swabbing of the cheek. I was unaware of that. Would make life so much easier than having to wait around 4-6 weeks to see how you and "it" react together. My daughter is a Clon girl and will not take anything else. She only takes it when she gets really bad, but I'm happy with how it turned out. And am glad it appears to be working for you, too, friend.

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