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Paxil Nightmare, anyone else?
#11
(08-08-2016, 12:49 AM)fishfarmer Wrote: Paxil was very expensive and after months I had every side-effect on the leaflet. Quit cold Turkey and awoke from a bad dream. Father is dying as are other family members. To old to run the farm anymore, and not many options for a new career. I was reading about depression and although a pretty happy guy, I had every symptom! Are antidepressants better these days or are there still major side effects? Would appreciate any insight from you all. Best to you, ff (My blood workup showed no Diabetes or Low T) which I suspected, after pancreatitis 2 years ago.

Hmmmmm. Everyone is surely different. I tried them all and Paxil was the only one for me.  I have been taking 40mg for 40 years and never had any side effects. Unless I tried to quit.  Cold turkey is a very bad idea.  Hope you can find one that works for you.
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#12
My husband takes Paxil and it works for him, BUT if he misses ONE dose, it messes him up so badly...
He gets lightheaded, dizzy and his mood is horrible anxiety.
For me, I have depression & anxiety/panic, so I tried many AD but Zoloft worked for me.
Been on it for years. I also take tr@m for an extra boost for my mood or energy- works
wonders for me & discovered that accidentally   Blush  .  I know diff AD's affect every single person
differently... We are all wired in our own unique way.
Mikka~
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#13
Morning Mikka,
I think that you are so right when you say that we are all different. My wife didn't respond to all the all-star ATD's, like Paxil, Lexapro, Effexor,and the like. Yet she responds to low-dose TRAM or OXY. Paxil almost killed her. The worst reaction that I have ever seen to a ATD. So glad that it works for your husbands because when it works for someone, it really works. I have seen it save people's lives. RM
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#14
Morning Rafterman!  Big Grin

You are right, AD does save lives and know many who would not
be with us to this day -without them.  Unfortunately, tho, for my sister,
she has been on EVERY antiDepr out there & trying for 20 yrs and nothing works for her. 
She's desperate and even questioning being "here" anymore. It's painful
to see her struggle and worry daily. It's times like this, for people like
her, that they would stretch the boundaries & to treat severe clinical
depression & PTSD (which she has) and use whateverrrrrrr it takes to
give her relief ex: Maryjane, Oxy, Tram....   But I know that won't happen. Undecided Boo.
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#15
(12-05-2017, 02:28 PM)Mikka Wrote: Morning Rafterman!  Big Grin

You are right, AD does save lives and know many who would not
be with us to this day -without them.  Unfortunately, tho, for my sister,
she has been on EVERY antiDepr out there & trying for 20 yrs and nothing works for her. 
She's desperate and even questioning being "here" anymore. It's painful
to see her struggle and worry daily. It's times like this, for people like
her, that they would stretch the boundaries & to treat severe clinical
depression & PTSD (which she has) and use whateverrrrrrr it takes to
give her relief ex: Maryjane, Oxy, Tram....   But I know that won't happen. Undecided Boo.
Hi Mikka,
I would have answered your post this morning, but I had gotten off the computer before you wrote back and am just coming back on now. I am deeply sorry about your sister's situation. IMO, there is nothing worse than major depressive disorder. People sometimes think that counselor's are immune to it, but I have suffered bouts of it throughout my life. I mean complete and utter 'I do not want to live even one more minute' type of depression. The kind where it's almost impossible to move from one minute of the day to the next. Dreading being alive. It's horrendous. I have also suffered from PSTD (nearly lost my life while being attacked by a client with a 14 inch knife in 1988), GAD and some world-class panic disorder. I am mentioning that to say that NONE of those things are as difficult as major depressive disorder because, in MDD, you lose your will and motivation to move forward. You cannot see the light at the end of the tunnel. Has she tried ECT? I have seen a success rate of 85-90% with the people whom I have counseled. It works best for refractory cases, such as hers. I also agree with you that what we need are alternatives to conventional ATD's and I think that they already exist...TRAM, Oxy, MJ, and one that I (apparently) am not supposed to post about on here (even though it's a Sched 3).People do not realize that MDD is a medical emergency! It needs to be treated ASAP. When you are in the grips of it, you don't feel like you can hang on until the next day, much less wait around for 4-6 weeks conventional meds to work. Let me know more, if you will. We will figure out something, because I would hate to see her to continue to suffer like that.  RM
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#16
Hi Rafterman!

Thank you for your input.. sounds like you've been thru a lot.  As far as my sis, she has no insurance for the past 4 yrs
and is very limited on her resources but I don't think she has tried the ECT. I will ask her, thank you for mentioning this.  I had a friend who, like her, tried everything including the ECT & wen to he!! and back & desperately wanted to heal but he ended up taking his own life about 5 yrs ago. I have to say, that event changed my mood and
I haven't been able to overcome his loss. I have sought therapy on the issue, but not much has changed. My AD do help, so I'm thankful for that.

And I agree, MDD is an emergency~  I like how it is becoming more in the news so there is more awareness
and the stigma needs to be addressed.

Have a great day!
M.
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#17
When I started thread I did not know what I know now. Yes I had a terrible experience with it but it would not be there if it did not help people. I learned from Doc just 6 months ago that they have a test now that enables the Doc too determine which AD is right for an individual, I assume some kind of blood test? She said many people had terrible side effects and the Big Pharma Industry developed this test to make sure the right AD was scripted for an individual. Chime in my Friend Rafterman, You Posting Son of a Gun! Best Wishes-FF
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#18
Anyone here ever get prescribed Luvox? My Doc is trying to get me on it?
Being kind to others costs nothing and enriches your life, 
never forget how you felt when someone was once cruel to you,
we all have felt unloved at one time or another we should never want another to feel that way. Smile
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#19
Hey there, my friends FF and Mikka!

Mikka, I am so sorry to hear about the friend that you knew who had tried ECT and everything else and ended up taking his life. I can surely see why that greatly affected you. Not only the associated grief that comes from having to go through like that, but also because of the doubts that it must have planted in your mind. One of the things that keeps people from becoming depressed is the assurance that if they did, there would always be something out there to pull them back out of it. And that IS the case for close to 90% of the people who do become depressed. Once you lose that feeling of assurance, it is easy to start feeling that the next person who ends up like that will be themselves (or a loved one). Those thoughts may not even be recognized at a conscious level, but they can drag a person down. Combined with the grief caused by the loss of that person's friend, it easy to see why it would be normal to become depressed. Death, particularly a tragic one, is very difficult for the human mind to reconcile. The best that many can do is compartmentalize it. Grieve it correctly, then attempt to live with it. It can drive a person deeper into depression if they try to totally eliminate it from their thoughts because that creates an impasse in the mind. It's asking the mind to do something that is impossible. I am not saying that any of this applies to you because I don't know if it does. I don't know enough about the grieving process that you employed after this event and I don't know enough about you, in general. I am just hoping that you aren't feeling less hopeful about your sister's situation because of what happened with your friend. It would be absolutely normal if you did feel that way, but I would advise to focus on the positive's (like the high percentage of people who can be helped out of depression, the high percentage who respond to ECT, the high percentage that are responding to alternative treatments..like TRAM, opioid's etc, and the promising new technologies that offer the most hope yet). One of the things is gene testing, that FF brought up. I address that below. Please read on because I come back to your sister's situation in the end.

Hey FF! Thanks for bringing up gene testing. It's relatively new, but full of promise. They swab your cheek and that gives them a sample of your DNA, which they then mix with different AD/ATD's and then observe how the meds metabolize. It can also be done with PK meds for people who suffer with pain. The old way to find the right med for a patient was a long PET session with IV introduction of different medications. This new way is exciting because it relies on DNA and is also so easy to participate in. When I had MDD, it was torture to accomplish the simplest thing. A trip for a PET scan would have been like climbing Mt Everest. GeneSight is the largest company of the few that are springing up. Insurance companies are beginning to cover gene testing. Medicare and Medicaid both cover it, 100%. Other insurance companies usually require a co-pay. GeneSight claims that the cost is usually a couple of hundred dollars. The fact that Medicare and Medicaid cover it is a very good sign. In my experience, they usually only cover tried and true procedures, not snake oil. It also bodes well for the future coverage by private insurance companies. 

Mikka, I know that you sister doesn't have insurance, but do you think she would qualify for Medicaid or any local benefit's? I know that Medicaid is technically insurance, but you know what I mean. In our state, hospitals and doctors group together under something called "AccessHealth" and offer free care (specialist's. labs, imaging, everything) for absolutely free. And you don't have to be indigent to join. I wonder if they may have such a thing where you live. Of course, if a person has none of these, they could still be treated at the ER for depression/anxiety if it's approached in the correct manner. I would say that about a quarter of our local population use the ER in this way, for all types of maladies. There are other ways too, but I can't discuss them on the boards. I know that you can't PM yet. I would like to give you my email address, but not sure if I am allowed to do that. I know that you can see everyone's email address when you reach 50, but the rules are pretty detailed. Hey FF, is it okay to put my email addy in a post? Please let me know.

Okay, will check back in tomorrow to see either of you have responded. Goodnight for now.  RM
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#20
(12-07-2017, 05:21 AM)Rafterman Wrote: Hey there, my friends FF and Mikka!

Mikka, I am so sorry to hear about the friend that you knew who had tried ECT and everything else and ended up taking his life. I can surely see why that greatly affected you. Not only the associated grief that comes from having to go through like that, but also because of the doubts that it must have planted in your mind. One of the things that keeps people from becoming depressed is the assurance that if they did, there would always be something out there to pull them back out of it. And that IS the case for close to 90% of the people who do become depressed. Once you lose that feeling of assurance, it is easy to start feeling that the next person who ends up like that will be themselves (or a loved one). Those thoughts may not even be recognized at a conscious level, but they can drag a person down. Combined with the grief caused by the loss of that person's friend, it easy to see why it would be normal to become depressed. Death, particularly a tragic one, is very difficult for the human mind to reconcile. The best that many can do is compartmentalize it. Grieve it correctly, then attempt to live with it. It can drive a person deeper into depression if they try to totally eliminate it from their thoughts because that creates an impasse in the mind. It's asking the mind to do something that is impossible. I am not saying that any of this applies to you because I don't know if it does. I don't know enough about the grieving process that you employed after this event and I don't know enough about you, in general. I am just hoping that you aren't feeling less hopeful about your sister's situation because of what happened with your friend. It would be absolutely normal if you did feel that way, but I would advise to focus on the positive's (like the high percentage of people who can be helped out of depression, the high percentage who respond to ECT, the high percentage that are responding to alternative treatments..like TRAM, opioid's etc, and the promising new technologies that offer the most hope yet). One of the things is gene testing, that FF brought up. I address that below. Please read on because I come back to your sister's situation in the end.

Hey FF! Thanks for bringing up gene testing. It's relatively new, but full of promise. They swab your cheek and that gives them a sample of your DNA, which they then mix with different AD/ATD's and then observe how the meds metabolize. It can also be done with PK meds for people who suffer with pain. The old way to find the right med for a patient was a long PET session with IV introduction of different medications. This new way is exciting because it relies on DNA and is also so easy to participate in. When I had MDD, it was torture to accomplish the simplest thing. A trip for a PET scan would have been like climbing Mt Everest. GeneSight is the largest company of the few that are springing up. Insurance companies are beginning to cover gene testing. Medicare and Medicaid both cover it, 100%. Other insurance companies usually require a co-pay. GeneSight claims that the cost is usually a couple of hundred dollars. The fact that Medicare and Medicaid cover it is a very good sign. In my experience, they usually only cover tried and true procedures, not snake oil. It also bodes well for the future coverage by private insurance companies. 

Mikka, I know that you sister doesn't have insurance, but do you think she would qualify for Medicaid or any local benefit's? I know that Medicaid is technically insurance, but you know what I mean. In our state, hospitals and doctors group together under something called "AccessHealth" and offer free care (specialist's. labs, imaging, everything) for absolutely free. And you don't have to be indigent to join. I wonder if they may have such a thing where you live. Of course, if a person has none of these, they could still be treated at the ER for depression/anxiety if it's approached in the correct manner. I would say that about a quarter of our local population use the ER in this way, for all types of maladies. There are other ways too, but I can't discuss them on the boards. I know that you can't PM yet. I would like to give you my email address, but not sure if I am allowed to do that. I know that you can see everyone's email address when you reach 50, but the rules are pretty detailed. Hey FF, is it okay to put my email addy in a post? Please let me know.

Okay, will check back in tomorrow to see either of you have responded. Goodnight for now.  RM

GOOD morning Rafterman!

You  are a very informative and a kind person. Thank you so much for trying to help me and my
sisters situation... You have wonderful insight, as well. I can't tell you how much I appreciate that!

My sister, I'm not sure about the Medicaid situation for her. I'll have to ask if she is covered
in that regard.  And the DNA testing for AD sounds amazing!!
That could really change the way we are treated and hopefully get some real relief
if we have the correct medication....
I'll have to do some research on that. Love it.

Have a wonderful day... or night, depending where you're at  Blush
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