04-19-2018, 03:26 PM
Thanks, Rafterman. CLL can be slow or fast growing. I fall in the middle. When originally DX the prognosis was 6-8 yrs life expectancy. At 8 yrs I would live long enough to see my youngest child reach the age of 18. I accepted that, if all my children were adults when I passed. Thanks to seeing, literally, some of the best CLL specialists in the world and the changing landscape in blood disorder field, we celebrated her 23 birthday a couple of days ago. I see my onc next week and I believe I'll be back in the infusion center by the end of the year. I know my CLL well and can feel all the signs and symptoms when it is progressing.
Though looking into SSD might be worthwhile, I wonder how the process would work since I'm officially retired. I'm sure the Union pension plan would have something to say about the additional income. I had planned on collecting SS at age 62, but riding SSD to 65 is appealing. I think when I'm actually back in treatment it will be a subject worth revisiting.
Thanks Again
MoJim
Though looking into SSD might be worthwhile, I wonder how the process would work since I'm officially retired. I'm sure the Union pension plan would have something to say about the additional income. I had planned on collecting SS at age 62, but riding SSD to 65 is appealing. I think when I'm actually back in treatment it will be a subject worth revisiting.
Thanks Again
MoJim

